Resources in Our Community

Support Group Meetings at Stanford

Rae Ann Berry, LCSW, Jessie Cairns, MSW or Victoria Cosley with the Stanford Liver Transplant Program, facilitate group support meetings twice weekly at Stanford University Medical Center.

Prospective transplant patients, recipients and families meet:

• Monday and Thursday (except holidays) 1:30 - 3:00 p.m. in Dietary 2, basement floor of Packard Children's Hospital, inside the main Children's Hospital cafeteria.

• Patient Education Seminars are presented every few months, usually on Saturday morning from 10:30 a.m. to 12: 00 noon, in the Packard Auditorium. Written invitations are sent out.

• Diabetes and Transplant Program: Under the umbrella of Diabetes and Transplant, we offer:
• A Diabetes Update Class each month; this one time class is for people with Diabetes pre-or post-transplant.  Family members and friends are encouraged to attend.  There is no charge, the class is about 75 minutes in length.  Anna Simos, MPH, CDE; Helen Shen, PharmD; and Patsy Obayashi,  RD, CDE will teach about the interrelationship of Diabetes/blood glucose management and transplantation—how optimal glucose control can help you to prepare for transplant and maintain optimal results post-transplant.  Call 650-498-4526 for dates and class reservation.
• Open Group Discussion Sessions are available weekly on a walk-in basis, to provide a place for people to problem-solve their Diabetes related issues.  We may review diet or blood glucose records, determine how your activities and exercise or transplant medications are affecting your blood glucose control.  We work closely with the transplant hepatologists, coordinators, and endocrinologist.  Open group discussion sessions are available on Tuesdays 9-11:30 a.m. in the Surgical Specialties Clinic.
• Individual appointments are possible on an as-needed basis, call to make an appointment at 650-498-4526.
• For information on the Diabetes and Transplant Program, go to Diabetes-organs-education.org

• Tuesday (at 9:45 a.m.) and Wednesday (at 10:45 a.m.) in the Transplant Clinic Conference Room
• Coach: Patsy Obayashi, Registered Dietitian (650) 723-5094
  

TRIO :Transplant Recipients International Organization

• San Francisco Bay Area Chapter
  408-446-0565 , (415) 239-5734, (510) 531-8921, (707) 838-4857, (530) 342-3664, (916) 791-1697
• National Office
  800-TRIO-386 or 202-293-0980

Local Support Group Meetings
Open to all organ transplant recipients, candidates, family members and other interested participent.

Many communities have a patient-led support group. Contact your social worker to search if there is a support group in your area.

More Resources

• Medical/Health Information:
  • Planetree Library
    2040 Webster Street
    San Francisco, CA 94115
    415-923-3681
    
  • Stanford Health Library
    Stanford Shopping Center
    Palo Alto, CA 94304
    650-725-8400
    
• Transplant Information:
  • American Liver Foundation (ALF.org)
  • Children's Organ Transplant Association
    Helps individuals of all ages arrange necessary funding for transplant expenses
    800-366-2682
    
  • The Transplant Foundation
    Grants for Immunosuppressive drug users
    800-285-5115
    
  • United Network of Organ Sharing (UNOS)
    • Managing the financial aspects of transplantation
    • Explanation of patient waiting list and how organs are allocated
    • Suggested questions to ask doctors about pre- and post-transplant issues
      800-24-DONOR or 888-TXINFO-1